29 Sep 2004

Maintaining medical privacy in an e-enabled health care system

FIPR makes the point that patients must give informed consent for the sharing of their personal health information for research purposes, just as they do for use of tissue samples. If not, FIPR predicts something like the Alder Hey child-organ scandal or the animal rights backlash.

Where consultation is impossible the party seeking access should consult a sample of patients affected, and give public notice of the proposed use.

The risks are made much worse by collating centrally patient records that have to date been held by GPs, says FIPR. It wants to see personal health information left in the hands of its natural custodians - GPs, hospitals and other carers - and transient administrative data such as billing information promptly deleted in the interests of preserving medical privacy.

Posted by William Heath on 29/09/04 at 9:33pm
Categories · "What do we want?" · Design: Co-creation · Foundation of Trust

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Ideal Government

Let's say what we want from e-enabled government. Let's observe government first-hand. Let's say "Wouldn't It Be Better If" (WIBBI). Become an ethnographer of bureaucracy today! It beats getting frustrated with public services.

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29 Sep 2004

Maintaining medical privacy in an e-enabled health care system

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29 Sep 2004

Maintaining medical privacy in an e-enabled health care system

Ideal Government

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